I was just on facebook and one of the Mother's of my former students posted the link to this blog by Regie Hamm. Regie is a songwriter and happened to win a contest for the show American Idol. His song was chosen and was sung by the winner, David Cook.
Regie is also a Father. A Father with an adopted daughter with Angelman Syndrome. Angelman Syndrome is caused by a chromosomal abnormality. I have worked with or taught at least 8 children with Angelman Syndrome and they are some of my favorite people :). People with AS typically do not speak (there are variations of the syndrome and there are people who do speak) and most do not walk.
This is a link to a blogpost written by Regie. I think it might be a very good description of what a lot of families who have children with significant disabilities go through.
How's Your Daughter