Wednesday, April 18, 2012
I have linked to a post to a blog called "Flight Platform Living". In it a Mother blogs about her life, her family and about one of her daughters who has a genetic disability called Smith Magenis Syndrome. Smith Magenis Syndrome is caused by a deletion on the 18th chromosome. Some of the characteristics of SMS are; issues with sleep, engaging personalities, varying degrees of intellectual delay, impulsivity, aggressiveness and attention seeking behavior. They also often self injure, which is a very difficult thing for a parent to see. I had a student in one of my classes with SMS and found him to be a very challenging child to teach, but yet couldn't help but love him. I ended up taking him home with me one weekend, because his Mother had never had the chance to be away from him for 9 years. Many people have never heard of SMS, even doctors I have spoken to have not often heard of it. But if you read this blog, you will see what wonderful people they can be.